List of patient-reported quality of life surveys

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This page lists patient-reported quality of life surveys used in the field of medicine, pharmaceuticals, and other scientific trials. These surveys are patient-reported outcome measures, may be questionnaires or surveys, and may be used to evaluate patient satisfaction, symptoms, disease state, or psychological well-being.

List

  1. The Adult Asthma Quality of Life Questionnaire (AQLQ) was developed at McMaster University in Ontario, Canada and was published in 1992.[15] It has since been used as a comparison tool[16] as well as a tool in clinical trials.[17][18]
  2. The Asthma Life Impact Scale (ALIS) measure was developed in 2010 by Galen Research.[19] It has been translated into 16 languages.[20]
  1. The Parents' Index of Quality of Life in Atopic Dermatitis (PiQOL-AD) measures the impact that atopic dermatitis has on quality of life, from the parents' perspective.[21] It has 28 items and was developed simultaneously in the United Kingdom, The Netherlands, Germany, Italy, Spain, France and the United States.[22] It has been utilised in several research studies investigating the treatment of paediatric atopic dermatitis with pimecrolimus.[23][24][25] and also in a research study regarding health-related quality of life measurement in children in Ibero-American countries.[26]
  2. The Quality of Life Index for Atopic Dermatitis (QoLIAD) measures the impact that atopic dermatitis has on a given patient's quality of life.[27] It is a 25 item questionnaire for patients over the age of 16.[28] The QoLIAD has also been utilized in studies looking into educational intervention,[29][30] topical corticosteroids[31] and pimecrolimus.[32]
  • Arthroplasty (Knee replacement).The Oxford knee score (OKS) is owned by Isis Outcomes and was developed at Oxford University. It was published in 1998.[33] It has been validated for use in assessing other non-surgical treatments for issues of the knee.[34]
  • Chickenpox. The Family Disruption Measure for Chickenpox was developed in 1994 by Galen Research.[35] It has been used in a study investigating rotavirus gastroenteritis.[36]
  • Chronic Otitis media. The Zurich Chronic Middle Ear Inventory (ZCMEI-21) has 21 questionnaires with answers as a 5-point Likert scale and measures health-related quality of life in chronic Otitis media with or without Cholesteatoma.[37] It has originally been developed in German and has been translated into several languages, including English,[38] Italian[39] and Japanese.[40]
  1. The Assessment of Quality of Life scales (AQoL) were psychometrically developed and refined over the past 30 years and are reliable and well-validated.[63] There are 4 instruments available; the AQoL-8D is the most comprehensive as it assesses HR-QoL across 8 domains - independent living, happiness, mental health, coping, relationships, self worth, pain, senses [64] (https://www.aqol.com.au).
  2. The Quality of Well-Being Scale (QWB) was developed in the 1970s, and a self-administered version called the QWB-SA was published in 1996.[65] The QWB has been used in studies investigating HIV patients[66][67] and musculoskeletal disease,[68] amongst others.
  3. The EQ-5D is a generalised health-related quality of life measure which was developed in 1991 by the EuroQol Group.[69] It has five standard dimensions and has been translated into over 60 languages.[70] The EuroQoL has been extensively used in clinical trials, investigating a range of topics including overactive bladder,[71] attention deficit hyperactivity disorder[72] and denosumab for osteoporosis.[73]
  4. The Nottingham Health Profile (NHP) is a general patient-reported outcome designed to measure a patient's view of their own health status, in a number of areas.[74] It can be completed in 5 minutes.[75] It was developed in 1975 and current copyright belongs to Galen Research.[76] Clinical research studies where the NHP has been utilized include investigations into erythropoiesis-stimulating agents,[77] glucocorticoid replacement therapy[78] and transcutaneous electrical nerve stimulation for tinnitus.[79]
  5. The Short Form 36 (SF-36) Health Survey is a survey of general health developed by the RAND corporation.[80] It was designed for use in clinical practice, research, health policy evaluations and population surveys.[81] It has been used in numerous studies including ones investigating giardia intestinalis,[82] breast cancer survivors[83] and Parkinson's disease.[84]
  6. The Sickness Impact Profile (SIP) was developed in 1997 by the Johns Hopkins University.[85] It consists of 136 items and has been adapted for strokes,[86] and ex-ICU patients.[87]
  7. The Health Utilities Index measures health status, health-related quality of life and produces utility scores.[88] It was developed by Health Utilities Inc. in Canada.[89] It has been used in clinical studies investigating knee osteoarthritis,[90] urinary incontinence[91] and children who have been admitted to intensive care.[92]
  1. The Herpes Outbreak Impact Questionnaire (HOIQ) is designed to determine the impact of recurrent genital herpes outbreaks on a patient's life.[93] Its efficacy has been tested in an Australian clinical trial.[94]
  2. The Herpes Symptom Checklist (HSC) was developed alongside the HOIQ in order to assess daily symptoms of genital herpes outbreaks.[95] It was also used in an Australian clinical trial which tested the effectiveness of famciclovir.[96]
  3. The Recurrent genital herpes quality of life measure (RGHQoL) was developed in 1998 by Galen Research in order to assess the impact recurrent genital herpes has on quality of life.[97] It has been used in clinical trials investigating famciclovir,[98] suppressive antiviral therapy[99] and patient perspectives and quality of life.[100][101]

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