Crohn's & Colitis Foundation
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Abbreviation | The Foundation |
---|---|
Founded | December 17, 1965[1] |
Founders | Shelby Modell and Irwin M. Rosenthal[2] |
13-6193105[3] | |
Legal status | 501(c)(3) nonprofit organization |
Headquarters | New York City[3] |
Area served | United States |
Methods | Funds research of Crohn's disease and ulcerative colitis, and provides information about Crohn's disease and ulcerative colitis[3] |
Members | more than 50,000 |
Vance Gibbs[2] | |
Michael Osso[4] | |
Revenue (2013) | $54,419,988[3] |
Expenses (2013) | $53,307,072[3] |
Employees (2013) | 379[3] |
Volunteers (2013) | 4,300[3] |
Website | www |
Formerly called | National Foundation for Ileitis and Colitis,[5] Crohn's and Colitis Foundation of America |
The Crohn's & Colitis Foundation (CCF) is a non-profit organization in the US that works to fund research to find cures for Crohn's disease and ulcerative colitis, as well as ways to improve the quality of life of people affected by these digestive diseases. Founded by Shelby Modell and Irwin M. Rosenthal,[2]and formerly known as The National Foundation for Ileitis and Colitis, and The Crohn's and Colitis Foundation of America.[5]It was incorporated on December 17, 1965.[1]CCF has more than 50,000 members, served by the national headquarters, as well as over 40 chapters nationwide.[6]
Research, educational workshops, as well as symposia, along with CCF's scientific journal, Inflammatory Bowel Diseases, enable medical professionals to keep pace with this rapidly growing field. The National Institutes of Health has commended the Foundation for "uniting the research community and strengthening IBD research".[6]The Foundation ranks third among leading health non-profits in the percentage of expense devoted to mission-critical programs, with at least 80 cents of every dollar CCF spends going toward medical research, professional education, and patient support.[7]
Research
The Crohn's & Colitis Foundation funds studies[8] at medical institutions, nurtures investigators at the early stages of their careers, and finances underdeveloped areas of research to find the causes of and cures for Crohn's and colitis.[9] CCF has provided more than $150 million for Crohn's and colitis research to date.[10]
Patients and Caregivers
The Crohn's & Colitis Foundation offers literature and patient support services nationally as well as through its forty regional chapters. The Foundation provides information and education for the estimated 3.1 million inflammatory bowel disease (IBD) patients and their families through a variety of periodicals (Take Charge,[11] Under the Microscope[12]), books, awareness campaigns, local chapter events, Webcasts, and through its web site.[3] Due to its extensive public awareness and outreach efforts, the Foundation reaches at least one out of every 18 patients, compared to the Arthritis Foundation, with one out of every 85, or the Juvenile Diabetes Research Foundation, with one out of every 435.[13]
Advocacy
Advocacy is a major component of the Crohn's & Colitis Foundation's mission. Its advocates are not only patients, but family members, friends, caregivers, and healthcare professionals who want to make their voices heard and see a future free from IBD. The Foundation advocates on behalf of IBD patients, caregivers, and healthcare providers. Foundation advocates call for increased Federal funding for Crohn's and colitis research and awareness programs designed to improve the lives of patients and improved access to care.[14]
Crohn's and Colitis Awareness Week
The Crohn's & Colitis Foundation designated the week of December 1–7 as Crohn's and Colitis Awareness Week in order to encourage all Americans to join in the effort to find cures for these diseases, help raise awareness and support research.
Fundraising
The Crohn's & Colitis Foundation primarily relies on the support of members and donors to continue its work. The Foundation raises funds through its local and nationwide special events, spearheaded by its national Team Challenge[15] and Take Steps[16] programs.
Team Challenge is the Foundation's endurance training and fundraising program, which prepares participants to run or walk a half marathon, take part in a cycling event, or experience a sprint triathlon while raising money for a cure.[15]
Take Steps, the Foundation's largest fundraising event, mobilizes participants in over 150 local communities across the nation to come together and walk for Crohn's and colitis research.[16][17]
The Foundation received $3,042,350 in grants from the United States Department of Health and Human Services between 2008 and 2015.[18] Its corporate sponsors from 2018-2022 include:[19][20][21][22][23]
- AbbVie
- Alfasigma
- Allergan
- AMAG Pharmaceuticals
- Amgen
- Arena Pharmaceuticals
- Amazon Web Services
- Bank of America
- Bellin Health
- Bloomberg L.P.
- BNY Mellon
- Boehringer Ingelheim
- Bristol Myers Squibb
- Celgene
- Centene Corporation
- Children's Hospital of Philadelphia
- Cohen Children's Medical Center
- Connecticut Children's Medical Center
- Daiichi Sankyo
- DiaSorin
- Dude Wipes
- The Durst Organization
- Eli Lilly and Company
- Epic Systems
- ESPN
- Express Scripts
- FCB Health
- Ferring Pharmaceuticals
- Gilead Sciences
- GlaxoSmithKline
- Goldman Sachs
- Highmark Foundation
- Insperity
- Janssen
- Jefferies and Company
- Johnson & Johnson
- Mayo Foundation for Medical Education and Research
- Medtronic
- MetLife
- Microsoft
- Nephroceuticals
- Nestlé
- Nevada State Bank
- New York Life Insurance Company
- Northwell Health
- NYU Langone Health
- OptumRx
- Organon
- Paysafe
- Pfizer
- ReachMD
- Salix Pharmaceuticals
- Sandoz
- Sangamo Therapeutics
- Sanofi
- Second Genome
- Seres Therapeutics
- Shire
- Syneos Health
- Takeda Pharmaceutical Company
- UCB
- UnitedHealth Group
- University of Pittsburgh Medical Center (UPMC)
- Walmart Foundation
- WebMD
- Wells Fargo
Great Comebacks Awards
Crohn's and Colitis Foundation of America established the Great Comebacks Awards in 1984 in order to recognize individuals who have triumphed over inflammatory bowel disease.[5] In 1991, the award was given to Dr. P. Kent Cullen, a colon surgeon who has ulcerative colitis and has undergone multiple ostomy surgeries.[5]
Mission
The mission of the Crohn's & Colitis Foundation is "to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases."[24]
See also
References
- ^ a b "Crohn's & Colitis Foundation of America, Inc." Division of Corporations. New York State Department of State. Accessed February 2, 2016.
- ^ a b c "Board of Trustees Archived 2016-03-01 at the Wayback Machine". Crohn's and Colitis Foundation of America. Accessed on February 2, 2016.
- ^ a b c d e f g "Form 990: Return of Organization Exempt from Income Tax". Crohn's and Colitis Foundation of America. Guidestar. December 31, 2013.
- ^ "Staff Archived 2016-01-26 at the Wayback Machine". Crohn's and Colitis Foundation of America. Accessed on February 2, 2016.
- ^ a b c d Anderson, Susan Heller. "Chronicle". The New York Times. June 5, 1991. p. B4.
- ^ a b "About Us - Crohn's & Colitis Foundation Information - Crohn's & Colitis Foundation". www.crohnscolitisfoundation.org.
- ^ "CCFA.org: Caucus". Archived from the original on 2011-05-16. Retrieved 2012-01-16.
- ^ "Crohn's & Colitis Foundation - Sponsor Information on GrantForward | Search for federal grants, foundation grants, and limited submission opportunities". www.grantforward.com. Retrieved 2024-03-19.
- ^ "Research Funding Opportunities". Crohn's & Colitis Foundation. Retrieved 2024-03-19.
- ^ "Our Mission and Core Values - Crohn's & Colitis Foundation". www.crohnscolitisfoundation.org.
- ^ "Archived copy". Archived from the original on 2010-12-14. Retrieved 2012-01-16.
{{cite web}}
: CS1 maint: archived copy as title (link) - ^ "Archived copy". Archived from the original on 2010-12-14. Retrieved 2012-01-16.
{{cite web}}
: CS1 maint: archived copy as title (link) - ^ "CCFA.org: Our Members". Archived from the original on 2010-02-08. Retrieved 2012-01-16.
- ^ "CCFA.org: Advocacy". Archived from the original on 2012-01-17. Retrieved 2012-01-16.
- ^ a b "Team Challenge - Crohn's & Colitis Foundation". www.ccteamchallenge.org.
- ^ a b "Crohn's & Colitis Foundation". cctakesteps.org.
- ^ "Crohn's & Colitis Foundation".
- ^ "Crohn's and Colitis Foundation of America[permanent dead link]". USAspending.gov. Bureau of Fiscal Services. United States Department of the Treasury. Accessed on February 2, 2016.
- ^ "Meet Our Partners". Crohn's & Colitis Foundation. Archived from the original on 2022-10-16. Retrieved 2022-10-16.
- ^ "Corporate Circle Memberships". Crohn's & Colitis Foundation. Archived from the original on 2022-10-16. Retrieved 2022-10-16.
- ^ "Our 2021 Supporters". Crohn's & Colitis Foundation. Archived from the original on 2022-10-16. Retrieved 2022-10-16.
- ^ Osso, Michael; John, Crosson. "2019 Annual Report" (PDF). Crohn's & Colitis Foundation. Archived (PDF) from the original on 2022-10-16. Retrieved 2022-10-16.
- ^ Osso, Michael; Crosson, John. "2018 Annual Report: Better Together" (PDF). Crohn's & Colitis Foundation. Archived (PDF) from the original on 2022-10-16. Retrieved 2022-10-16.
- ^ "About Us | Crohn's & Colitis Foundation Information | Crohn's & Colitis Foundation". www.crohnscolitisfoundation.org. Retrieved 2017-05-10.
External links
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- Non-profit organizations based in New York City
- Disability organizations based in the United States
- Organizations established in 1965
- Autoimmune disease organizations
- Health charities in the United States
- Medical and health organizations based in New York (state)
- Crohn's disease
- Ulcerative colitis