Brittle Bone Society
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About
| Formation | 1968 |
|---|---|
| Registration no. | 272100 |
| Focus | Medical research, patient support |
| Headquarters | Dundee, Scotland |
Founder | Dr. Margaret Grant |
Chief Executive | Patricia Osborne |
| Website | https://www.brittlebone.org |
The Brittle Bone Society[1] is the only UK wide charity dedicated to providing support to people affected by osteogenesis Imperfecta (OI).
Background
The Brittle Bone Society was established in 1968 in Dundee by Margaret Grant, who has OI. When she was young, Grant was aware that there was virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later, very little had changed. For many years Grant was the driving force of the society, which was recognised when she was awarded an MBE in 1989[2] and in 2018 when she was awarded an honorary degree from the University of Dundee.[3]
The society now has more than 1,000 members and works closely with specialist medical units and other professionals throughout the UK.
The CEO is Patricia Osborne who has been working with the charity since 2009[4]
The society's archives, which include about thirty boxes of material, are held by the University of Dundee.[5]
Footnotes
- ^ "THE BRITTLE BONE SOCIETY - Charity 272100". register-of-charities.charitycommission.gov.uk. Retrieved 14 April 2024.
- ^ "Margaret Grant, 87: Music-loving founder of OI charity". 14 April 2024. ISSN 0140-0460. Retrieved 14 April 2024.
- ^ "Honorary Degrees". University of Dundee. Retrieved 21 January 2020.
- ^ BBS. "Our Team". BBS. Retrieved 14 April 2024.
- ^ "Brittle Bone Society Archive comes to the University of Dundee". Archives Records and Artefacts at the University of Dundee. University of Dundee. 7 September 2010. Retrieved 25 October 2013.
- "MS 327 Brittle Bone Society Archives". Archive Services Online Catalogue. University of Dundee. Retrieved 14 April 2015.
External links
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